Browsing All posts tagged under »Alzheimer’s disease«

A Journal Entry from 1997

February 27, 2019

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In 1997, I was 16 years old and in grade 11. My mother had “full-blown” Alzheimer’s. She was 46 years old. Writing in my journal was my form of therapy and probably the only productive coping tool I used during these years. I kept a diary from the time I was 13 and stopped writing […]

Dear Mama,

November 14, 2018

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Diwali has come and gone. It was a tough week as usual. I missed you so much. I don’t know how to live my life without you. I don’t know how to be happy on these “days” that are supposed to be about family and togetherness. All I feel is so much pain and darkness. […]

Life After Alzheimer’s

September 16, 2017

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My mom died when I was 19. She was 49. I stopped being a caregiver. But dementia is a shadow that continues to follow me. The summer has ended. I am relieved. I won’t have to look at pictures of people eating ice cream. Eating ice cream makes me anxious. I don’t mean feeling guilty. I […]

Becoming “Unity” – A Dementia Story

July 6, 2017

2

I have always hated my name. The name given by my parents. Ekta. As a teen, I went by a childhood moniker, Sweets. But that didn’t go with the bad girl image I wanted to portray in college, so I switched it back to Ekta. Then, in 2004, Henri was born. Henri was my alter […]

10 Lessons from People l/w Dementia

March 8, 2017

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There are innumerable myths about what dementia is and how it diminishes a person. I vehemently differ from this opinion. I wanted to list down all the things I have learned, relearned and had reinforced as a direct result of working and loving people living with dementia.

Dancing w/ Mr. Lee

January 24, 2017

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A good day at work consists of music and dancing. The impact of music and dance on people living with dementia cannot be overstated. Here's another anecdote from my end.

Old Photo, Old Pain

January 23, 2017

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On January 23rd 2001, my mother succumbed to Young Onset Alzheimer's. I recently found my favourite picture in the whole wide world.

The Purple Jacket – A Story About Dementia

November 5, 2016

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I have known Luba* for the last few months. She is 77 and comes to the dementia day program daily; I see her once a week. When she started, she would tell me in English, “My English, not good.” It was pretty good. She could make simple conversation. She has the sweetest personality; she greets […]

Living Well W/ Dementia

October 16, 2016

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The views in this article are my own. They do not represent the views of my employer in any way. Note – PLWD: People Living W/ Dementia “Living well with dementia” is all the buzz now, and rightly so. There is much stigma attached to a diagnosis of dementia. People are forced to hide because […]

Show and Tell & People l/w Dementia

September 16, 2016

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Yesterday at our group (for people living with Young Onset Dementias – under 65 – and their care partners) we did a round of show-and-tell. We had asked them to bring an object that meant something special to them. Each time one of them spoke, we learned something new about them. Each time they spoke, […]

My 81-year old twin

August 31, 2016

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I met Jean* and her daughter, Alice* for coffee at a nearby Starbucks today. Jean loves the ‘Bucks cappuccino as do I! I saw her sitting at a table while her daughter was getting their beverages. Jean looked so elegant in her black broad-legged linen capris and matching shirt. She wore a loose denim cape […]

A verse for John Mann

June 3, 2016

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John Mann is 53; he is the frontman of Spirit of the West, the iconic Celtic Canadian band. He is currently living with Young Onset Alzheimer’s (YOD). “Spirit Unforgetabble,” is a documentary about his life and journey with (YOD) that debuted this year. I urge you to watch it. Spirit of the West performed their […]

65 things about my mom

May 29, 2016

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My mom would have turned 65 on May 30th. Sharing my birthday week with her used to be very exciting when I was younger. Now, it’s the worst thing ever. May is a hard month. My parents wedding anniversary was May 18th and then her birthday, followed by mine. I just feel blue and pissy. Over […]

Conversations with a 96-year old

May 17, 2016

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The first day I met Jay, he asked me, “Guess how old I am!” I said, “85”. “No, I am 95,” he said proudly. He turned 96 this past December. He does everything himself, without assistance. He bathes, eats, uses the washroom by himself. He walks independently with the help of a cane. He is proud […]

Is the wedding day important?

April 9, 2016

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I hid our wedding album in storage for the longest time. I don’t show it to anyone. I hate how I look in wedding wear! I hate (Indian) weddings. I just don’t like wearing sarees or make-up or high-heels or gold jewelry. I hate having to poke my eyes with lenses. I don’t like crowds. I just […]

When Words Fail…

April 6, 2016

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When I first met Mary*, what struck me most was her loud, shrill voice. She had this deliberate way of talking – enunciating every word she spoke. It’s hard to tell her age, but my guess is 70s at least. She has very short salt and pepper hair, more pepper surprisingly. She is in a […]

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