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Browsing All posts tagged under »Alzheimer’s disease«
A Journal Entry from 1997
In 1997, I was 16 years old and in grade 11. My mother had “full-blown” Alzheimer’s. She was 46 years old. Writing in my journal was my form of therapy and probably the only productive coping tool I used during these years. I kept a diary from the time I was 13 and stopped writing […]
Life After Alzheimer’s
September 16, 2017
My mom died when I was 19. She was 49. I stopped being a caregiver. But dementia is a shadow that continues to follow me. The summer has ended. I am relieved. I won’t have to look at pictures of people eating ice cream. Eating ice cream makes me anxious. I don’t mean feeling guilty. I […]
Dancing w/ Mr. Lee
January 24, 2017
A good day at work consists of music and dancing. The impact of music and dance on people living with dementia cannot be overstated. Here's another anecdote from my end.
Old Photo, Old Pain
January 23, 2017
On January 23rd 2001, my mother succumbed to Young Onset Alzheimer's. I recently found my favourite picture in the whole wide world.
The Purple Jacket – A Story About Dementia
November 5, 2016
I have known Luba* for the last few months. She is 77 and comes to the dementia day program daily; I see her once a week. When she started, she would tell me in English, “My English, not good.” It was pretty good. She could make simple conversation. She has the sweetest personality; she greets […]
A verse for John Mann
June 3, 2016
John Mann is 53; he is the frontman of Spirit of the West, the iconic Celtic Canadian band. He is currently living with Young Onset Alzheimer’s (YOD). “Spirit Unforgetabble,” is a documentary about his life and journey with (YOD) that debuted this year. I urge you to watch it. Spirit of the West performed their […]
65 things about my mom
May 29, 2016
My mom would have turned 65 on May 30th. Sharing my birthday week with her used to be very exciting when I was younger. Now, it’s the worst thing ever. May is a hard month. My parents wedding anniversary was May 18th and then her birthday, followed by mine. I just feel blue and pissy. Over […]
Is the wedding day important?
April 9, 2016
I hid our wedding album in storage for the longest time. I don’t show it to anyone. I hate how I look in wedding wear! I hate (Indian) weddings. I just don’t like wearing sarees or make-up or high-heels or gold jewelry. I hate having to poke my eyes with lenses. I don’t like crowds. I just […]
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From Outside The Mall 
February 27, 2019
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