Browsing All posts tagged under »Young Onset Dementia«

A Journal Entry from 1997

February 27, 2019

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In 1997, I was 16 years old and in grade 11. My mother had “full-blown” Alzheimer’s. She was 46 years old. Writing in my journal was my form of therapy and probably the only productive coping tool I used during these years. I kept a diary from the time I was 13 and stopped writing […]

Dear Mama,

November 14, 2018

2

Diwali has come and gone. It was a tough week as usual. I missed you so much. I don’t know how to live my life without you. I don’t know how to be happy on these “days” that are supposed to be about family and togetherness. All I feel is so much pain and darkness. […]

Five Weddings & My Mother’s Dementia

November 26, 2017

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Weddings paralyze me. Recently, I attended a good friend’s wedding in the Washington D.C. area. The morning of the wedding, I sort of had a meltdown. Sid found me in tears, weeping uncontrollably in bed. I realized, perhaps for the first time, the real reason I avoid attending weddings, or have to ply myself with […]

Life After Alzheimer’s

September 16, 2017

3

My mom died when I was 19. She was 49. I stopped being a caregiver. But dementia is a shadow that continues to follow me. The summer has ended. I am relieved. I won’t have to look at pictures of people eating ice cream. Eating ice cream makes me anxious. I don’t mean feeling guilty. I […]

Melting Together: A Story by People l/w Dementia

May 4, 2017

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My friend Romina and I co-created The Boomers Club, a wellness program at the Alzheimer Society of Toronto, for people living with Young Onset Dementia (under age 65) and their family care partners. We focus on physical exercise and cognitive stimulation. The group has a strong component of peer support for people living with dementia […]

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