Browsing All posts tagged under »Early-onset Alzheimer’s disease«

Five Weddings & My Mother’s Dementia

November 26, 2017

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Weddings paralyze me. Recently, I attended a good friend’s wedding in the Washington D.C. area. The morning of the wedding, I sort of had a meltdown. Sid found me in tears, weeping uncontrollably in bed. I realized, perhaps for the first time, the real reason I avoid attending weddings, or have to ply myself with […]

Life After Alzheimer’s

September 16, 2017

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My mom died when I was 19. She was 49. I stopped being a caregiver. But dementia is a shadow that continues to follow me. The summer has ended. I am relieved. I won’t have to look at pictures of people eating ice cream. Eating ice cream makes me anxious. I don’t mean feeling guilty. I […]

Melting Together: A Story by People l/w Dementia

May 4, 2017

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My friend Romina and I co-created The Boomers Club, a wellness program at the Alzheimer Society of Toronto, for people living with Young Onset Dementia (under age 65) and their family care partners. We focus on physical exercise and cognitive stimulation. The group has a strong component of peer support for people living with dementia […]

On Love, Laughter, Sushi & Dementia

March 17, 2017

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Dementia is sometimes a condition of constant losses. At The Boomers Club, we try to negate that!

Old Photo, Old Pain

January 23, 2017

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On January 23rd 2001, my mother succumbed to Young Onset Alzheimer's. I recently found my favourite picture in the whole wide world.

Show and Tell & People l/w Dementia

September 16, 2016

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Yesterday at our group (for people living with Young Onset Dementias – under 65 – and their care partners) we did a round of show-and-tell. We had asked them to bring an object that meant something special to them. Each time one of them spoke, we learned something new about them. Each time they spoke, […]

A verse for John Mann

June 3, 2016

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John Mann is 53; he is the frontman of Spirit of the West, the iconic Celtic Canadian band. He is currently living with Young Onset Alzheimer’s (YOD). “Spirit Unforgetabble,” is a documentary about his life and journey with (YOD) that debuted this year. I urge you to watch it. Spirit of the West performed their […]

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