Browsing All posts tagged under »Early-onset Alzheimer’s disease«

Dear Mama,

November 14, 2018

2

Diwali has come and gone. It was a tough week as usual. I missed you so much. I don’t know how to live my life without you. I don’t know how to be happy on these “days” that are supposed to be about family and togetherness. All I feel is so much pain and darkness. […]

Five Weddings & My Mother’s Dementia

November 26, 2017

6

Weddings paralyze me. Recently, I attended a good friend’s wedding in the Washington D.C. area. The morning of the wedding, I sort of had a meltdown. Sid found me in tears, weeping uncontrollably in bed. I realized, perhaps for the first time, the real reason I avoid attending weddings, or have to ply myself with […]

Life After Alzheimer’s

September 16, 2017

3

My mom died when I was 19. She was 49. I stopped being a caregiver. But dementia is a shadow that continues to follow me. The summer has ended. I am relieved. I won’t have to look at pictures of people eating ice cream. Eating ice cream makes me anxious. I don’t mean feeling guilty. I […]

Melting Together: A Story by People l/w Dementia

May 4, 2017

4

My friend Romina and I co-created The Boomers Club, a wellness program at the Alzheimer Society of Toronto, for people living with Young Onset Dementia (under age 65) and their family care partners. We focus on physical exercise and cognitive stimulation. The group has a strong component of peer support for people living with dementia […]

On Love, Laughter, Sushi & Dementia

March 17, 2017

3

Dementia is sometimes a condition of constant losses. At The Boomers Club, we try to negate that!

Old Photo, Old Pain

January 23, 2017

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On January 23rd 2001, my mother succumbed to Young Onset Alzheimer's. I recently found my favourite picture in the whole wide world.

Show and Tell & People l/w Dementia

September 16, 2016

2

Yesterday at our group (for people living with Young Onset Dementias – under 65 – and their care partners) we did a round of show-and-tell. We had asked them to bring an object that meant something special to them. Each time one of them spoke, we learned something new about them. Each time they spoke, […]

A verse for John Mann

June 3, 2016

2

John Mann is 53; he is the frontman of Spirit of the West, the iconic Celtic Canadian band. He is currently living with Young Onset Alzheimer’s (YOD). “Spirit Unforgetabble,” is a documentary about his life and journey with (YOD) that debuted this year. I urge you to watch it. Spirit of the West performed their […]

Like Mother, Like Daughter

April 3, 2016

19

I found this picture of mummy while rummaging through pictures on my recent trip back home. Needless to say, I quiver with emotion when I see a picture of her. But this one makes me vibrate like a washer-dryer on an extra large load. It strikes me like lightning and I want to fall to […]

Whom do you love the most?

March 17, 2016

22

Memories of mom – physical and emotional resurface every now and then. Precisely for this reason, I did not look at pictures of her, especially from the times she was sick. One of the major regrets I have is not taking more pictures with her when she was well. We barely have pictures of her […]

“Still Alice”: A Review from an Alzheimer’s Care Partner

February 9, 2015

18

Let me begin by saying I feel people cannot be objective about this movie. I understand that. It’s the first mainstream Hollywood movie about something so un-glamorous, Alzheimer’s! I may come across as harsh, but I think I have the right to be. I tried googling for more unbiased and educated views about the film, […]

My Mother’s Barber: Alzheimer’s Diary

October 31, 2014

4

They say it takes a village to raise a child. As caregivers, we realize that it takes an entire community to deal with Alzheimer’s. Extended family members, friends, neighbors, healthcare professionals, coworkers, employers, employees, service providers like household help, etc.; a personalized universe of all these groups and more is essential to help a family […]

A Conversation With Someone Who Has Early Onset Alzheimer’s

May 23, 2012

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Michelle* has Early Onset Alzheimer’s Disease (EOAD). A person is categorized as having EOAD when they have symptoms or the disease before the age of 65. Michelle was diagnosed in 2011 and since then she has been grappling with the changes in herself, the changes that are yet to come and the reactions of her friends […]

Crutches and Spice

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Path of Yogah

Journey to the Highest Self

Yoga4U

The Yoga & Reiki studio

Dementia: Sharing The Good Times

Don't let dementia spoil your life.

When The Fog Lifts

A Journey with Dementia, rights and advocacy

Shreya Vikram

Blurring the lines between poetry and prose

Woman, Interrupted

"We're all mad here" - Cheshire Cat in Alice in Wonderland

BlueMonkey

Mind too spins on its own axis between the day and night. There's no wrong or right side.

Unforgettable

Lessons and love from Alzheimer's World

Queering the Kindom

The unfurling story of two women who love Jesus, justice, and each other.

Sincerely Kate

The Obsessive Blog of a Compulsive Pen Pal

The Bipolar Writer Mental Health Blog

A Collaborative Mental Health Blog

Unity Counselling

Step towards your most authentic life

Diary of a Not-So-Angry Asian Adoptee

Mom, wife, adoptee, Huffington Post blogger, advocate and somewhat self-deprecating and neurotic goofball.

Conundrum.

Dabbles in writing, loves music and nature. Sierra Leonean

Chronically Grateful Me

Life is hard enough. Don't go through life with pain that’s keeping you clutching the steering wheel. Join me as I learn to deal with Hashimoto’s- Hypothyroidism-Osteoarthritis- Osteonecrosis – Spondylolisthesis and how going to a mostly to a plant-based lifestyle and meditation helps my pain. Deb Andio

Skillfully Well & Painfully Aware

Living skillfully well with chronic conditions

Maranda Elizabeth

To be true to my own weirdnesses.

Hey WriterGrrl!

Still classy, brassy, and sassy after all these years

The Catalysts for Change

Bringing awareness to mental illness and sexual assault

A Moreno Blogs

Seeking Stories. Discovering pamana.

vivaran

Everything Matters

Pigs, Figs & Higgs

Making it up as I go.

Crisstea

Ramona

Damyanti Biswas

For lovers of reading, writing, travel, humanity

kateswaffer.wordpress.com/

Kate Swaffer: Creating life with words: Inspiration, love and truth

Pies Lies And Thighs

A long term travel blog full of stark reality, hilarious cynicism and beautiful escapism.

off~peak

learning to go with the flow by going against the tide

Under Reconstruction

Hope isn't an emotion, but a daily choice.