Iris Murdoch had Alzheimer’s Disease. My mum did too. And the strange thing is, it was around the same time. 1995-96. Iris died in 1999, mum in 2001. Iris was 70 odd, mum was 49.
“Iris” is a beautiful film. I have never read any of Iris Murdoch’s books. I think I am too daft for them. But the bits in the movie were lucid. Simple. Even for idiots like me. I watched the film for the first time today, though it released in 2001. I knew I couldn’t handle it. And today I realised, I still can’t. The movie is 1 hr and 27 minutes long, I bawled through it, without pausing for a single minute.
As I saw a woman of Iris’s stature, I was awed and cowed and afraid – all at the same time. And as I saw her on screen – yes, I saw Iris and not Kate Winslet or Judi Dench – I saw bits of my mother rise from the ashes. As Iris slowly realised that her “writer’s block” was in fact more, I saw mum struggle. My mum, in tears one day, asked my dad, “Do I have menin…menin…menin…” I think she meant, “meningitis” – the most serious illness of the brain that she knew.
As I saw Iris struggle with reading words as simple as “animal”, I saw my mum struggle to write her name. There’s this scene in the movie where the doc asks Iris the name of the British Prime Minister, and Iris struts her stuff, but avoids admitting that she in fact, couldn’t, for the life of her, remember the damned name of that guy! I remembered the doc asked my mum the same question. Mum stuttered, and said, “Deve..Deve..Deve..” and stopped. H.D. Devegowda. She couldn’t remember.
Iris was shown the picture of tennis racket, and she said, “tennis thingy”, she couldn’t remember the word “postman”, SHE – the woman who wrote 25 books, couldn’t remember these two-penny-bit words. Mum, the woman who spoke 4 languages, taught kids in school for 22 years to read and form sentences, couldn’t either. The doc had asked mum to draw a clock, here’s a sample of what she did:

John, Iris’s husband, well I saw bits of my dad in him, and bits of my sister and me as primary caregivers. Iris was a very desirable woman. Intriguing to the core. Talented is an insult. Forward-thinking, an understatement. One of the most powerful scenes is when her husband, John shouts at her in bed, once the disease has almost taken over, he says, “All your friends are finished with you! I’ve got you now! Nobody else has you anymore except your fucking best friend, Dr. Fucking Alzheimer with all his fucking gifts! I’ve got you now, and I don’t want you!” It echoes the memories of things I have said to mom, or at least thought them a million times. I had confessed to my then best friend JN, that I wished mum was dead.
One day, Iris just walked out of the house. John doesn’t know where she went. He looked for her everywhere and he can’t find her. Iris wandered aimlessly across the city. She didn’t know where she was, she didn’t know where she was going or where she came from, till a friend found her in a supermarket, “between the soup and the baked beans”. On a day like that, mum had wandered off too and it had taken us 3 hours to find her. The next day, my sister quit college and started staying home to prevent that from happening. She didn’t complete her college.
Iris and her husband lived alone, by themselves. Their house was a mess. Unwashed dishes, papers everywhere, dust, books strewn. Iris used to take care of everything. And when she fell sick, John had to. But he was too old and too distressed and too stumped to care. Something similar happened to our entire family. No one knew what was happening behind our closed doors. Most people chose not to. Others we kept away.
Iris roamed around the house aimlessly at night, so did mom. Iris sang songs from her youth, so did mum. Iris forgot John, the love of her life. And mom forgot dad, the love of her life, and me, the one she most often proclaimed in the early days of her illness, as her favourite person in the world.
Iris looked at her reflection and asked, “Who’s there?”, hey, mum did too. Iris began to fear and avoid the things she loved, so did mum. Only music seemed to matter to both of them in their last days of coherence.
Iris couldn’t hold a conversation about anything of consequence, neither could mum. She responded with kindness, as long as someone spoke to her kindly, it could be anyone. But soon, mum couldn’t even speak. She lost all speech, only sounds. Forgot how to chew, as I guess what might have happened to Iris.
But all in all, Iris, as a young person was full of life, laughter and meaningful words. My mum spoke the most insightful things, I remember them till today. In my short 13 years of having known her, I think I learnt verbatim whatever she told me.
In the movie, Iris speaks a lot about the importance of language and education. Ironic. But true.
There’s this quote in the start of the movie,
“Education doesn’t make you happy, and nor does freedom.
We don’t become happy just because we’re free, if we are,
or because we’ve been educated, if we have,
but because education may be the means
by which we realise we are happy.
It opens our eyes, our ears…
tells us where delights are lurking…
convinces us that there is only one freedom
of any importance whatsoever… that of the mind…
and gives us the assurance,
the confidence, to walk the path our mind…
our educated mind… offers.”
My mum used to say,
“There is no wealth greater than education.
It is your key to freedom, to be whoever
you want to be. We can give you no amassed wealth,
just your education. Use it, let it give you the wings,
to a good life, to a meaningful life, and let it teach you
the value of everything and everyone good, for everything
and everyone good, is worth loving.”
So you see…like I said in the beginning, my mum was just like Iris Murdoch. At least to me.
Pramada Menon
November 22, 2009
moving! many many hugs
Pragya Mishra
November 22, 2009
Ekta, thanks a lot for sharing the memory of the most precious person in your life with all her vulnerabilities. It takes a lot of courage to pen down what you have… Your mom from up there is looking at you & feeling extremely proud of her little girl . Keep the faith in life girl
Pooja
November 22, 2009
i love you sweets…. maami wd’ve been very proud of you..
Jina
November 22, 2009
If I say it was touching, it would be an insult.It was much more than that. And Im more and more amazed with you.Wish I knew you better in TISS
Pooja Kulkarni
November 22, 2009
Ekta, you inspire me to be strong, accept the reality and embrace the past. Love and hugs.
Priya Pillai
November 22, 2009
Ekta, its beautifully told
Khushboo
November 22, 2009
ekta, this is wonderful. its inspiring and im sure it is so hard to open up closed doors to the world, to people who might or might not relate to life as you see it. your writing reflects who you are and i love that about you…reading your notes is like watching ekta in the mirror
big hug.
Purvi Porecha
November 22, 2009
sent me back in time…
Manjari
November 22, 2009
Well written and touches the heart.. You have a gift to put words to feelings but remember, don’t revisit those feelings too often, u have to smile.. not recall the pain..!! It was all about experiences, not about destiny..! Take care, much love.
Selvi
November 22, 2009
Your Mum up there and all of us around are very proud of you Ekta!Amazingly well written.
Neha Nair
November 22, 2009
very much inspiring ekta.. thanks a lot for sharing this!!!
Tasleem Zehra
November 22, 2009
beautiful note!!!God bless ya!
Mann Se
November 22, 2009
This is truly inspiring. I am sure your mom must feel really proud on how you express her story, her courage, and her life so beautifully! And, yes, this makes me feel – life can do strange things to you – but still we never stop to live!
Fatema
November 23, 2009
I think I can guess how difficult it must have been for you to write this Ekta. And there is nothing more I can say.
Did you know that Mrs Ramanathan has met Iris Murdoch? Maybe you would like to talk to maam just to get a feel of her…
Hatikvah
November 23, 2009
Wow…
sukanya
November 25, 2009
came to your blog from Nino’s Mum.
this post brought tears to my eyes….my mom is showing early signs of dementia as well and we are getting ready for the inevitable-as ready as one can be.
your mom surely had reasons for proclaiming you as her favorite person in the world. she must be so proud of you.
it takes guts to face this debilitating disease- your post was inspiring!
harini
December 2, 2009
You dont leave much for us to say sweetheart !! Words fail me , and so does my voice.
homecooked
January 7, 2010
Hugs Henri! I cant even fathom what your family went through. My mom-in-law has Alzheimers so I kinda know what you are talking about. THough hers is not as bad as you described!
Ekta Hattangady
January 7, 2010
Hi Homecooked,
Good to hear from you after so long. Not all people progress as fast as my mom or get it as early as my mom. In fact, an early onset like mum’s is also not that common. Iris got it later in her life. Not all patients who get Alzheimer’s live to see the end as mom did. But I am sure some aspects of your life are affected quite a bit owing to your mom-in-law, especially if she lives with you. If you need any help or information or just someone to talk to, don’t hesitate to call. I have quit my job to set up a support group for caregivers. You can read more about it at http://www.careforcarers.wordpress.com
SM
February 4, 2010
Brilliant and poignant, you left me speechless sweetheart! You must publish this to share with the rest of the world and earn too.. The proceeds could help you run Caregiver.. wat say buddy? cheers!
sonal chopra
November 16, 2010
Found you on freshly pressed and this post moved me completely! Followed a few posts of yours from your blog… I was enjoying reading them so much and then I hit this one. The courage in your words is unquestionable, absolutely loved every word that you said here about your mom.
Henri
November 16, 2010
Hi Sonal, I saw your comment on my latest blog post too! Thank you for reading the other stuff. Yes, my mum truly has been instrumental in shaping who I am. First, by being present and then, by being sick and lastly, by being absent. I love her crazily
and I am glad it comes through in my words.
vivek hattangady
August 6, 2011
Just brilliant.I have no words.